Union Health Ministry approves Rare Diseases National Policy 2021

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New Delhi, 03 April: The Union Health Ministry on Saturday approved the National Policy 2021 on Rare Diseases. Under this policy, 20 lakh rupees can now be spent on the treatment of people suffering from rare diseases from the National Health Fund Scheme.

According to this policy, genetic diseases, rare cancers, infectious tropical diseases, tuberculosis diseases etc. fall under the category of rare diseases.

The Ministry of Health has uploaded this policy on its website. Among the rarest diseases in India are hemophilia, thalassemia, sickle-cell anemia, primary immunodeficiency in children, auto-immune disease, lyso-somal storage malformations, such as Pompe’s disease, Hirschprung’s disease, Gaucher’s disease, cystic fibrosis. , Includes hemangiomas and some types of muscular dystrophy.

According to this national policy, for the rare disease which can be cured with one treatment, the patient suffering from it will get Rs 20 lakh from the National Health Fund Scheme. However, this benefit will be given not only those below the poverty line but also to those 40 percent beneficiaries of Pradhan Mantri Jan Arogya Yojana (PMJAY).